Sunday, September 13, 2009

Introducing Jace John Nelson

We had our ultrasound last Wednesday. It was incredible to see the baby moving around and find out it's a boy! He was nice and cooperative while the technician took all his measurements, but once she was ready to get the picture shots, he put his arm over his head and fell asleep. When the tech tried waking him up (had me roll over, jiggled my tummy a lot, etc) he just curled up in a ball and rolled over with his back to us. I guess we have a good sleeper on our hands!

His heart and brain and limbs look like they're developing just fine. He size is right where it needs to be for how far along I am. But our doctor called the day after the ultrasound saying that when she took a look at it, they saw that he might have a small cleft lip/cleft palate, if one at all. So we're going back in for another ultrasound on October 5 to hopefully get a better look. She's thinking that a month of growth will help them see clearly if he has it or not. We're glad to hear that it isn't distinct enough or big enough for her to be conclusive at this time (from what I've read online, you can spot cleft lip as early as 16 weeks, and this ultrasound happened at 19 weeks). So we're hoping and praying that 1) if he has it, God might heal it before the next ultrasound or by time he's born, 2) he doesn't have it, or 3) if he does have it, we're praising God for medical advances and what they're able to do for this these days!

Cleft Lip/Cleft Palate is most common in boys, and 1 in 700 babies born in the US has it. So it's much more common than we thought it was. This in itself is a testimony to what a great job doctors are doing with it, in that you'd never realize how many people have had it.

If he does have it, we'll get set up with a team from Dornbechers up in Portland. Cleft lip is typically repaired when they are 10 weeks to 3 months old, and cleft palate repaired by 9 months old. So while it's so treatable, he could still have quite a first year of surgeries in store for him (and potentially many more surgeries ahead of him if it’s cleft palate).

All this made me REALLY want him to have a name already--to give him more of an identity. And I wanted his name to mean something, since he'll have so much to face at first. I started looking through names that meant things like strong, God heals, etc. Finally, we decided on "Jace" (which comes from Jason, but that won't be his name). Jace means healer, and on some websites, it also meant God is Sovereign. Both fit well we thought. Plus, Nolan loved that it's unique, since he likes names that he hasn't really heard before. So as of now, baby's name will be Jace John Nelson (Nolan’s middle name is John, it’s also his father and grandfather’s name).

We really have an incredible peace about the whole thing. I’m so thankful for a doctor who’s thorough and spotted this. From what I’ve read, not all doctor’s catch it. What a blessing to be able to know what we’re heading into and to be prepared for it! We're sad for the pain he could potentially face at such a young age, but at least he won't remember it as he gets older.

He'll be beautiful no matter what. And I'm just sure, if he does have cleft palate/lip, he'll be a much stronger person because of it.

6 comments:

Lea Ann said...

My son, Ethan, was born with a cleft lip & palate. He will be 18 months old this Thursday.

His palate surgery is scheduled for next Tuesday. He had his lip repaired at 3 months, & a bone graft in his gum area at 10 months. He also got ear tubes at the time of the second surgery. The palate surgery was scheduled for the beginning of August, but had to be postponed due to illness.

I came across your post in a google search. If you have any questions about anything, let me know, & I'll get you my email address. It's nice to talk to someone who has been through it. I'll also send you some before & afters of Ethan, if you'd like to see them. It looks like you've already done quite a bit of research!

I'll be praying for you, your husband, & your little one!

Jill said...

Lea Ann,
Thank you so much for your comment! It's great to hear from someone who is going through this right now. I'll keep you posted as we learn more.
Praying for you and your son as he has surgery on Tuesday!
Jill

Anonymous said...

Jill I just read about Jace. So that you know, Nolan's Great Grandfather was also John.
Grandpa Jack.

John, Shannon, Broderick, Camden, and Adalynn said...

I am so glad you found us....you will be surprised at the larfe group of cleft mommies in the blogging world. You can go to my page and see many of them in the sidebar. They have all been such an inspiration to me.

I wish you luck in your future ultrasounds. I hope you find answers soon. Cleft or no cleft, the Lord has blessed you with a beautiful baby made in His image. Enjoy your blessing!

John, Shannon, Broderick, Camden, and Adalynn said...

oops....large not larfe :)

Anonymous said...

Just a word of happiness and encouragement. I am 50 years old and have a cleft palate - and I think I turned out just fine :) Back when I was born, it was a much bigger deal than it is now. They have come so far with surgeries, etc.

And to be quite honest, that difference in me always made me a stronger and more confident person. My advice, should your new little one have a cleft, is to do what my parents did. They never let my little "defect" or difference be an excuse for anything. That is why today I am the confident person I am - if people sometimes stare (my operation was not as perfect as they are today) I just smile and let it go.

I guess that's why I started Taekwondo at 50! I am a Green Belt now. And if I was asked if I could be born again, I would still ask to be born with a cleft. I am unique.

Hope this helps.

Danny
DEvatt357@yahoo.com